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Alastair Kent OBE

Consultant in Health Policy and Patient Engagement in Rare and Genetic Diseases

Alastair Kent was the executive director of Genetic Alliance UK (GA-UK) the national alliance of over 200 patients support organisations helping those with rare and genetic disorders for almost 25 years. He founded and chaired Rare Disease UK, the campaign managed by GA-UK until January 2018. In April 2017 he stepped back from this to take on a new role for the organisation, namely that of Ambassador, promoting awareness of the needs and expectations of all those affected or at risk from rare and genetic conditions. He retired from Genetic Alliance UK at the end of April 2018, but remains active in the field, working as an independent consultant.

Alastair was made OBE for services to healthcare in 2011. In 2017 he became a Fellow of the Royal Society of Arts for his work on behalf of genetic patients and families, and was named Healthcare Advocate of the Year at the Communique Awards ceremony. In 2018 he received a lifetime achievement award from Eurordis, the European organisation for rare diseases.

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