Evaluation of the Consent Process and Patient Documentation

To help improve the quality of the consent process and materials in the 100,000 Genomes Project, we  commissioned a national service evaluation in early 2016. This commitment is outlined in the 100,000 Genomes Project protocol.

The evaluation was led by colleagues from the North West Coast NHS GMC, West London NHS GMC, and West Midlands NHS GMC, with support from Genomics England and NHS England.

Together with findings from other similar and local GMC surveys, results from this evaluation will help to improve the current participant materials. The surveys are now closed.


Click on the images below to download the Project Report and a summary and infographic of the findings.

Other downloads

This project was approved by a Research Ethics Committee. You can download the schedule below.