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Call for collaborators for genomic sequencing projects with under-served communities

This call for collaborators hopes to identify potential partners who may wish to work with the Diverse Data initiative to help address major gaps in genomic datasets and ensure that genomic medicine truly does work for everyone.

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Background on this call for collaborators

The Diverse Data initiative at Genomics England was set up to reduce inequalities in genomic medicine, and part of this involves addressing the imbalance in genomic datasets that we have – particularly the ancestral imbalance.

As part of the initiative, we are looking to sequence and/or recruit thousands of participants from under-represented groups.

What we're looking for

You might be a small charity advocating for better treatments for a genetic condition that disproportionately affects minoritized communities in the UK, or a principal investigator of a study that collected blood samples from participants from a range of ethnicities recently, that could be re-used with their consent – we'd like to hear from you, please get in touch.

Partners who can:

  • Provide access to samples suitable for whole genome sequencing or
  • Facilitate recruitments of new participants

These sequencing studies should have the potential to address a clinical research need relevant to an under-served UK community. Note that this does not have to fall within the remit of other Genomics England projects, such as the 100,000 Genomes Project.

Partners from:

  • Community and patient groups
  • Academic institutions
  • Biobanks and clinical trials

Expression of interest

Download and complete the form below to express your interest in collaborating with the Diverse Data team on this project.

How to submit your expression of interest

Please complete the form and send it in an email to [email protected]

This expression of interest closes on July 21, 2022.

We will review submissions on a rolling basis, so we recommend submitting as soon as you're ready.

Quality of response/English will not be taken into consideration when the team reviews the submissions. Please answer all the questions outlined in the form, but if there are any gaps, we'll be sure to get in touch to clarify.

If you have any questions, please contact the Diverse Data initiative's programme lead, Maxine Mackintosh at [email protected]

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