Useful links

Please see below for other useful resources that you may find helpful.

Insurance and genetic testing:
- ABI Code on Genetic Testing and Insurance (PDF)
- GOV.UK Code on genetic testing and insurance: consumer guide

NHS Genomic Medicine Service
Visit the NHS England website for more information about the NHS Genomic Medicine Service.

Download the Patient Information Sheet
Click here to download the Genomic Research Patient Information Sheet v1.4 (PDF).

Questions about the NGRL?
If you need to contact us, you can do so by email ([email protected]) or telephone (0808 2819 535).

NHS Genomic Medicine Service: Research information
Find out about donating your sample to the National Genomic Research Library, our secure national database of de-identified data.

Taking part in the Library
Read about what it means for you to take part in the National Genomic Research Library.

Data in the Library
See what data we look after and who can access it.

Consenting for others
If you may need to give consent for someone else to be in the Library, find out more about how you can do this.

Changing your mind
You are able to change your mind about being part of the Library at any time. See here for more information on how you can withdraw.

Useful links
See this page for further resources and information.