The Participant Panel

The national Participant Panel is currently at its capacity with 30 active members representing patients from across England, but we are still keen to hear from those keen to register their interest for future opportunities.

Who can be a member of the Panel?

Anyone who has taken part in the 100,000 Genomes Project can be on the Participant Panel. Carers of people who have taken part are also welcome. We would like participants from both the cancer and rare disease areas of the Project.

Members should be able to put themselves into other people’s shoes, and see the point of view of other participants, as well as using their own experiences.

What does it involve?

The Panel meets three times a year in London. Those who are unable to join meetings in person can join by telephone or Skype. There are likely to be documents to read or consider before any meetings. There may also be follow-up work. Documents and paperwork will usually be sent by email.

Some Panel members also sit on other committees in Genomics England. Panel members who also sit on these committees will need to attend extra meetings.

Why take part?

The Panel plays a vital role in our groundbreaking work with the 100,000 Genomes Project, and ensures the interests of participants are always at the centre of it. Panel members will help guide this pioneering project and how genomic medicine is used in the NHS in the future.

Are expenses paid?

Panel members will be paid for their time and reasonable expenses will be covered. Genomics England will provide support and training for everyone on the Panel.

How to apply

Please email us if you are interested in joining the Panel. In your email, please outline why you are interested in this role. Please also include how you are involved in the 100,000 Genomes Project. Finally, please include your name and contact details.

You can contact us on [email protected] if you have any questions.