Participant data requests under the Data Protection Act
As part of the 100,000 Genomes Project, Genomics England holds genome sequencing data of participants together with relevant information from their NHS medical records.
Under the Data Protection Act (1998) anyone who has taken part in the Project is entitled to request this information. Formally this is known as a ‘Subject Access Request’.
If you request information that relates to your NHS medical records we will direct you to the most relevant organisations. This may be your GP, hospital or other health care organisation that has provided you with care.
If you would like to request a copy of the genome sequencing data held by Genomics England please download the form (opens as PDF) and submit your application in writing to:-
Information Governance Lead
Queen Mary University of London, Dawson Hall, Charterhouse Square
London, EC1M 6BQ