Alison has joined the Research Network Committee as a Participant Panel representative. She was recruited into the Rare Disease branch of the Project in 2016 due to an undiagnosed fault with her immune system. She holds a strong belief in linking patient voices and researchers as both have much to gain from this partnership, in particular the participants of the 100,000 Genomes Project who have donated their samples in the hopes of diagnosis, but also to advance understanding so that the NHS can offer a better outcome for those with rare diseases in the future.
