Our vision is that all patients, regardless of their background, receive the same quality of genomics-enabled personalised medicine, supported by the latest research on people like them.
Addressing the gap in diverse genomic data
The Diverse Data Initiative will deliver on its aims through four streams of activities:
Research & discovery: Understand the data gap
Improve our understanding of genomic diversity by reviewing, stimulating and conducting research into diversity and its impacts on scientific, clinical and health system outcomes.
Data: Fill the data gap
Increase the volume, depth and breadth of genomic data available on individuals from under-represented groups to fill the data gap.
Tooling & behaviours: Bridge the data gap
Work with clinicians, analysts, researchers, patients and community groups to develop new tools, processes and approaches to changing research, service-delivery practices, recruitment and care.
Community: Close the gaps, together
Convene the Genomics England, genomic medicine, patient and data communities to develop, deliver or implement equity-enhancing strategies.
How the team works: Sharing and learning in the open
Often work is shared at the end and has a shiny, positive slant to it. Issues of data diversity can raise complex scientific, technical as well as social and emotional debates. The Diverse Data Initiative aims to share more during the process to show the journey, and hopefully encourage others to course direct. To learn more about how the team works, interim outputs and what they're thinking, head to the team's Medium blog.
More resources on data diversity
Mind The Gap: Stories of Health Data DiversityA collection of stories, research, articles and perspective of health and genomic data diversity, launched in Autumn 2021.
Share your own data diversity storyContribute your story to Mind The Gap, no matter how big or small.
Stay up to date
If you would like to stay informed of any events or announcements relating to our work on diverse data, please sign up to our mailing list below.