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Diverse Data

The initiative aims to reduce health inequalities and improve patient outcomes within genomic medicine.

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The vision

Our vision is that all patients, regardless of their background, receive the same quality of genomics-enabled personalised medicine, supported by the latest research on people like them.

Intended outcomes of the Diverse Data Initiative

1. More and better research on diverse populations

2. Improvements in prognosis, diagnosis and treatment across diverse populations

3. Earnt and sustained trust of excluded communities in personalised medicine

Addressing the gap in diverse genomic data

The Diverse Data Initiative will deliver on its aims through four streams of activities:

Research & discovery: Understand the data gap

Improve our understanding of genomic diversity by reviewing, stimulating and conducting research into diversity and its impacts on scientific, clinical and health system outcomes.

Data: Fill the data gap

Increase the volume, depth and breadth of genomic data available on individuals from under-represented groups to fill the data gap.

Tooling & behaviours: Bridge the data gap

Work with clinicians, analysts, researchers, patients and community groups to develop new tools, processes and approaches to changing research, service-delivery practices, recruitment and care.

Community: Close the gaps, together

Convene the Genomics England, genomic medicine, patient and data communities to develop, deliver or implement equity-enhancing strategies.

How the team works: Sharing and learning in the open

Often work is shared at the end and has a shiny, positive slant to it. Issues of data diversity can raise complex scientific, technical as well as social and emotional debates. The Diverse Data Initiative aims to share more during the process to show the journey, and hopefully encourage others to course direct. To learn more about how the team works, interim outputs and what they're thinking, head to the team's Medium blog.

See the Diverse Data team's Medium blog

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