Joining the 100,000 Genomes Project research community

Individuals can apply to become part of our research community – the Genomics England Clinical Interpretation Partnership (GeCIP).

GeCIP is organised into ‘domains’. These domains are groups of researchers, NHS clinical disease experts, NHS healthcare professionals and trainees. The domains align to the different diseases included in the 100,000 Genomes Project. There are also cross-cutting domains that carry out research across the whole of the project such as Health Economics, Population Genomics. See the full list.

The aim is to carry out research and improve the understanding and practice of clinical genomics.

Proposing a new GeCIP domain

Calls for expressions of interest to form new GeCIP domains are launched as and when they are required. They will be advertised here, in our GeCIP newsletter and on our social media channels.

Become a member of an existing GeCIP domain

Please read the information below carefully, and then use this form to apply to become a member of an existing domain.

Note that any member of staff at an NHS Genomic Medicine Centre that has helped to recruit patients can become a member relevant GeCIP domain if they request it using the application form above.

Membership of GeCIP is open to any individual, student or member of staff, who is affiliated with:

  • UK academic research institutions (e.g. universities, research institutions etc.)
  • NHS trusts or authorities
  • UK and foreign charitable organisations directly related to the focus of the 100,000 Genomes Project
  • Foreign universities and research institutions that carry out significant research activity
  • UK and foreign governmental departments that carry out significant research activity (eg. MRC, NIH, PHE)
  • Foreign healthcare organisations (private or public) that undertake significant research activity

Membership is not open to those who are employed by:

  • Private UK healthcare institutions;
  • Commercial companies;
  • Self-employed.

Individuals from the above excluded institutions may be eligible to apply if they are able to show that their employer supports a significant amount of independent research within their role. There may be other circumstances where an exception is appropriate.

As a member of a GeCIP domain you will be given access to the 100,000 Genomes Project dataset. However, there are expectations of members of the GeCIP research community that go beyond data access and analysis. These include:

  • Contribution to the knowledge base for genome interpretation (for example via PanelApp)
  • Active and effective collaboration within your GeCIP domain and with other GeCIP domains
  • Expert assistance in genome interpretation to improve diagnostic yield for NHS Genomic Medicine Centres (GMCs)
  • Contribution to training within your domain where needed
  • Contribution to the ongoing management and administration of the GeCIP domain where requested
  • Other activities in line with the provisions of the GeCIP Rules

Applicants should note that their proposed research plans may overlap with projects that are already part of the domain’s detailed research plan. Where such overlap exists, we would expect new GeCIP members to collaborate with those already undertaking the analysis.

See the page on data and data access for details of how GeCIP members can apply to access the data.
In the future, a fee-for-access option will be available. Details are yet to be defined.

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