Participant forms

Forms for 100,000 Genomes Project participants can be found below.

Consent forms (cancer)

• Participant consent form – for patients with cancer (or suspected cancer) (C1)
• Personal consultee declaration form – for personal consultees of patients with cancer (or suspected cancer) (C2)

Consent forms (rare disease)

• Participant consent form – for patients with a rare genetic disease and their adult relatives (R1)
• Personal consultee declaration form – for personal consultees of patients with a rare genetic disease and their adult relatives (R7)

Withdrawal forms

• Withdrawal information and form – for adult or child participants (6a)
• Consultee declaration of advice regarding adult participant withdrawal information – for consultees (withdrawal) (6b)

Opt in/opt out forms for additional findings

• Information sheet and form to OPT OUT from receiving additional findings. For adult and/or child participants (7b)
• Information sheet and form to OPT IN to receive additional findings. For adult and/or child participants (7a)

• NHS Genomic Medicine Service withdrawal form – for adult or child participants

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