Events

 Upcoming   Seminars   External events   Past events  (links to videos and other resources)

Upcoming

Genomics and Personalisation of Cancer Care regional events

NHS England and Genomics England in partnership with Cancer Research UK and Macmillan and the NHS Horizons team would like to invite you to take part in one of four regional cancer transformation events “Genomics and Personalisation of Cancer Care” planned for this Spring to embed genomic medicine into routine clinical cancer care.

Colleagues from across the cancer community including patient groups are invited to join us so that we can hear your views and gain your support for the implementation of co-produced regional action plans that will support the mainstreaming of genomic medicine into cancer care following the completion of the 100,000 Genomes Project.

These events are aimed at the wider cancer community and key system partners that will need to be closely involved in mainstreaming genomic medicine into routine cancer care.

All are open to patients, clinicians and key partners who are passionate about improving care in cancer.

DATES FOR REGIONAL EVENTS: 

  • 19 April 18          Birmingham (Birmingham Botanical Gardens, Westbourne Rd, Edgbaston, B15 3TR)
  • 16 May  18          Bristol (DoubleTree by Hilton, Redcliffe Way, BS1 6NJ)
  • 18 May  18          Leeds (Hilton Leeds City, Neville Street, LS1 4BX)

Details and registration: Free of charge. Places are limited. Click on the links above to register. If you have any questions please get in touch at england.genomics@nhs.net.

Undiagnosed Genetic Conditions Information Event: Oxford

The Oxford Genomic Medicine Centre has teamed up with SWAN UK, Oxford AHSN, and the Centre for Personalised Medicine to host an information day for families with children with undiagnosed genetic conditions.

This event takes place on Thursday 26 April 2018 at St Anne’s College in Oxford, from 10am to 2pm.

Parents of children with global development delay, or learning or physical difficulties that unexplained, will benefit from this event, as it will provide information about new advances in genetic testing and an opportunity to meet other local families with similar experiences.

The information day will feature talks about why some genetic conditions are so hard to diagnose, how genetic testing works, and what national projects – like the 100,000 Genomes Project and Deciphering Developmental Disorders (DDD) – are doing to help.

Details and registration: Free of charge and refreshments provided. Places are limited – booking is essential. Email info.events@undiagnosed.org.uk or call 020 7831 0883 to reserve a place.

Further information can be found on SWAN UK’s website.


Seminars in Genomic Medicine 

Our most recent seminar was with Professor Cecilia Lindgren on the ‘Genetics of Obesity and Human Fat Distribution’.

⇒ View videos of previous seminars


External events

These are not run by Genomics England but may be of interest to healthcare professionals, scientists or participants in the Project.


Previous external events

An evening’s discussion event at Cheltenham Science Festival 2017 – please find a recording of the event on the linked page.

“The 100,000 Genomes Project is now in full swing, sequencing around 70,000 patients’ DNA codes. As genomics picks up speed, it raises a whole new set of ethical questions for Radio 4’s Inside the Ethics Committee regulars Deborah Bowman, Anneke Lucassen and Bobbie Farsides to consider. Join them and chair Vivienne Parry to decide what you’d do as a typically complex and tricky case is discussed.”

 #futuredebates

These panel debates hosted by the Administrative Data Research Centre for England are part of the UK-wide ‘Future Debates’ series by the British Science Association (BSA), supported by Genomics England.

The panel members will examine the topic of science funding and who does it.

  • Does it matter if private companies fund science?
  • Does private funding create bias in the research?
  • How can we trust researchers?

Future Debates

PHG FoundationStorify | Write-up
28 November 2017, Clare College, Cambridge.

#PHGconf17

An international line-up of expert speakers explored how genomics and other emerging technologies are transforming the healthcare landscape, and consider some of the critical people, practical and policy issues that lie ahead; suitable for anyone with an interest in aspects of genomic medicine and personalised healthcare – practical, policy, or person-centred.

Event run by the PHG Foundation and sponsored by:

Pharmacogenetics and Stratified Medicine Logo


Past Genomics England events

We have held a variety of events over the past two years. These include debates, public meetings and conferences. See below for details of some of our recent meetings.

View all the videos of our genomic medicine seminars.

 Watch the event on BioNews (YouTube – new window)

 View our Storify collection of the evening’s Twitter conversations

Read a summary of the event from BioNews

Together with the Progress Educational Trust, we discussed genomic medicine and consent to the use of genomic data on the evening of Monday 11 September at this Public Event.

The event built on discussion of these issues in the recent Generation Genome report from the UK’s Chief Medical Officer, Professor Dame Sally Davies, and formed part of the Genomics Conversation programme of activities led by us.

You can view a day’s talks and discussion around tissue handling in our video playlist – opens in a new tab.
This event was held here at Genomics England in partnership with NHS England and the Royal College of Pathologists on 19th July 2017.

⇒ Read more on our Cancer Pathology page.

We explored how genetics and lifestyle contribute to dementia at our event in London on 20 July 2017.

Experts discussed factors that affect our risk of developing dementia, how we make sense of what we hear in the media and the difficult decisions facing people who have a rare inherited form of Alzheimer’s.

Read more: https://www.alzheimers.org.uk/genetics-event 

“Providing Answers, Changing Lives, Transforming the NHS” – Tuesday 04 July 2017

A public event about the future of genomic medicine and the NHS, produced by the Progress Educational Trust (PET) in partnership with Genomics England, which launched a new phase of the Genomics Conversation.

Speakers included:

View the BioNews Storify collection of tweets and links relating to the event.

Our rare disease meeting in May 2015 brought together researchers and clinicians to help inform the rare disease data models used in the 100,000 Genomes Project.

Our GENE Consortium was launched at a two day event in London in March 2015. 10 companies came forward to create the GENE Consortium, to accelerate the development of new diagnostics and treatments for patients. Read more about the launch on our News pages.

An evening event organised by the Progress Educational Trust (PET) in November 2014 in partnership with Genomics England and City University London’s Science Journalism course. This event tackled head on many of the questions and concerns related to data security and commercial aspects of Genomics England’s mission and partnerships. It gave everyone an opportunity to put questions and comments to those involved in the project and to hear a range of contrasting views on the ethical and practical issues raised, with speakers: Professor Mark CaulfieldProfessor Tim HubbardDr Mark Sheehan and Dr Sarah Wynn.

At the Genomics England Clinical Interpretation Partnership (GECIP) launch meeting on 27 June 2014 clinical research colleagues were given an update on the status and plans for Genomics England together with an outline of GECIP and how researchers, clinicians and funders can engage with it to harness the potential of the 100,000 Genomes Project.
The Great Hall at St Bartholomew’s Hospital in London was the historic setting for Genomics England’s first engagement events on Thursday 3 October 2013.

There were two events – one for patients and the second for clinicians and other professionals. Each event included short presentations and questions and answers with the audience.

Genomics England held a suppliers event on 5 November 2013 in London. A document to accompany the event can be found here (opens PDF document): Annotation Supplier Presentation 

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