The Genomics Conversation
Does It Matter Who Funds Science?
Upcoming events in November 2017:
- Camberwell, London Thurs 16th, 17:30 – 19:30
- BSA London, Weds 22nd, 18:30
- Leamington Spa, Thurs 23rd, 18:30 – 21:00
- Ipswich, Tues 21st, 19:00 – 22:00
- Southampton, Sat 25th, 19:00 – 22:00
- Norwich, Tues 28th, 18:30 – 20:30
These panel debates hosted by the Administrative Data Research Centre for England are part of the UK-wide ‘Future Debates’ series by the British Science Association (BSA), supported by Genomics England.
The panel members will examine the topic of science funding and who does it.
- Does it matter if private companies fund science?
- Does private funding create bias in the research?
- How can we trust researchers?
No previous knowledge is needed top attend this event, everyone is welcome. Members of the public will have the chance to ask questions to the panel throughout the night.
The event is FREE but registration is required through the BSA Eventbrite (see above).Future Debates
Seminars in Genomic Medicine
Our most recent seminar was with Professor Cecilia Lindgren on the ‘Genetics of Obesity and Human Fat Distribution’.
These are not run by Genomics England but may be of interest to healthcare professionals, scientists or participants in the Project.
Healthy futures: genomics and beyond
28 November 2017, Clare College, Cambridge.
£160 (NHS employee discount available)
Join an international line-up of expert speakers to explore how genomics and other emerging technologies are transforming the healthcare landscape, and consider some of the critical people, practical and policy issues that lie ahead. This meeting is suitable for anyone with an interest in aspects of genomic medicine and personalised healthcare – practical, policy, or person-centred.
More information and tickets (opens in new tab)
Event run by the PHG Foundation and sponsored by:
Rare disease surveillance – a global perspective
The International Network of Paediatric Surveillance Units 10th Scientific Conference
Tuesday 13 March 2018, SEC Centre, Exhibition Way, Glasgow G3 8YW, Scotland
Held as a satellite session of the Royal College of Paediatrics and Child Health annual meeting: a one day conference exploring the public health and clinical impacts of paediatric rare disease surveillance on child health.
Speakers include: Professor Robert Will, Dr Alison Smith-Palmer, Dr Mirjam Mäuseahl-Feuz.
Details and registration: www.inopsu.com/conference2018
Contact: 020 926 173/4 BPSU@rcpch.ac.uk
An evening’s discussion event at Cheltenham Science Festival 2017 – please find a recording of the event on the linked page.
“The 100,000 Genomes Project is now in full swing, sequencing around 70,000 patients’ DNA codes. As genomics picks up speed, it raises a whole new set of ethical questions for Radio 4’s Inside the Ethics Committee regulars Deborah Bowman, Anneke Lucassen and Bobbie Farsides to consider. Join them and chair Vivienne Parry to decide what you’d do as a typically complex and tricky case is discussed.”
Genomics England has held a variety of events over the past two years. These include debates, public meetings and conferences. See below for details of some of our recent meetings.
View all the videos of our genomic medicine seminars.
Together with the Progress Educational Trust, we discussed genomic medicine and consent to the use of genomic data on the evening of Monday 11 September at this Public Event.
The event built on discussion of these issues in the recent Generation Genome report from the UK’s Chief Medical Officer, Professor Dame Sally Davies, and formed part of the Genomics Conversation programme of activities led by us.
We explored how genetics and lifestyle contribute to dementia at our event in London on 20 July 2017.
Experts discussed factors that affect our risk of developing dementia, how we make sense of what we hear in the media and the difficult decisions facing people who have a rare inherited form of Alzheimer’s.
Read more: https://www.alzheimers.org.uk/genetics-event
“Providing Answers, Changing Lives, Transforming the NHS” – Tuesday 04 July 2017
A public event about the future of genomic medicine and the NHS, produced by the Progress Educational Trust (PET) in partnership with Genomics England, which launched a new phase of the Genomics Conversation.
- Professor Dame Sally Davies (Chief Medical Officer at the UK Government)
- Professor Michael Parker (Chair of Genomics England’s Ethics Advisory Committee).
- The discussion was chaired by Mark Henderson (Director of Communications at the Wellcome Trust).
Our rare disease meeting in May 2015 brought together researchers and clinicians to help inform the rare disease data models used in the 100,000 Genomes Project.
Our GENE Consortium was launched at a two day event in London in March 2015. 10 companies came forward to create the GENE Consortium, to accelerate the development of new diagnostics and treatments for patients. Read more about the launch on our News pages.
An evening event organised by the Progress Educational Trust (PET) in November 2014 in partnership with Genomics England and City University London’s Science Journalism course. This event tackled head on many of the questions and concerns related to data security and commercial aspects of Genomics England’s mission and partnerships. It gave everyone an opportunity to put questions and comments to those involved in the project and to hear a range of contrasting views on the ethical and practical issues raised, with speakers: Professor Mark Caulfield, Professor Tim Hubbard, Dr Mark Sheehan and Dr Sarah Wynn.
There were two events – one for patients and the second for clinicians and other professionals. Each event included short presentations and questions and answers with the audience.