Participant Information Sheets and Consent Forms

There is a range of information available here on our site for different participants.

NHS GMC staff can also download all the consent materials, plus posters and flyers to advertise the project.


This short introduction booklet gives an overview of the 100,000 Genomes Project (Information sheet 9, v1.0) .

Video introduction to taking part in the 100,000 Genomes Project.

Prezi Introduction of the 100,000 Genomes Project (includes a voiceover).


For both cancer and rare disease

Rare disease

Rare disease – Information for children and young people

Download the information sheets, or listen to the information below.

Information for children aged 6 to 10 years (R3)

Information for young people aged 11 to 15 years (R4)

Assent form for children and young people with a rare genetic disease, aged 6-15 years (R3/R4)

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