Participant Information Sheets and Consent Forms

There is a range of information for different participants.

If you would like to know more about the 100,000 Genomes Project, please call our information line on 0800 389 8221, open from 9.00am to 5.00pm Monday to Friday. Staff can talk through any of this information with you. Please note the information line can’t tell you if you are eligible to take part, or give individual medical advice.

NHS GMC staff can download all the consent materials, plus posters and flyers to advertise the project.


This short introduction booklet gives an overview of the 100,000 Genomes Project (Information sheet 9, v1.0) .

Video introduction to taking part in the 100,000 Genomes Project.

Prezi Introduction of the 100,000 Genomes Project (includes a voiceover).


For both cancer and rare disease

Rare disease

Rare disease – Information for children and young people

Download the information sheets, or listen to the information below.

Information for children aged 6 to 10 years (R3)

Information for young people aged 11 to 15 years (R4)

Assent form for children and young people with a rare genetic disease, aged 6-15 years (R3/R4)

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