Upcoming GeCIP events:
Ethics and Social Science GeCIP 1st National Community Event
On 26 February 2018, the Ethics and Social Science GeCIP held a community event at the Wellcome Collection in London. Professor Dame Sally Davies was the keynote speaker, putting forward her ‘genomic dream’ of rolling out a genomic medicine service across the NHS. Ethical and societal considerations are key to this undertaking and thus have been at the heart of the 100,000 Genomes Project from the beginning. At the same time, the 100,000 Genomes Project is a unique opportunity for the academic community in ethics and social science in terms of research methodologies, scale of outreach and subject matter. The event as a whole explored these two considerations.
It was very special to hear from participants in the Project. They talked about their reasons for joining the project and their hopes for what it might bring both them and future patients in an NHS genomic medicine service. One theme that was discussed in the research projects presented and by these participants was the moment at which a diagnosis is actually received – how it is communicated, what happens next and how unique it is that the 100,000 Genomes Project creates both a clinical and a research resource. Participants gave an impassioned plea to clinicians to show compassion when sharing a difficult diagnosis.
If you are running a relevant GeCIP event or meeting, please get in touch.