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Dr Helen Bulbeck

Participant Panel member

Helen has experienced cancer from a carer and patient perspective. This 360-degree view means that she is well placed to understand the perspectives of patients, carers and health care professionals and is skilled in PPI advocacy.

Her roles in brainstrust, a national brain cancer charity which she founded, and as a consumer representative are as a disseminator of information and the provision of a network and community, so that she can provide advice on achieving effective consumer involvement and creating a voice. Helen’s key drivers are the patients, their carers and healthcare professionals, with whom she interacts daily. Her ethos of 'none of us is as smart as all of us' is a core value for her.

Elemental to Helen’s work is high performance coaching and shared decision-making. When we are no longer to able to change a situation, we are challenged to change ourselves. The coaching relationship enables us to face these challenges, so that we learn how to develop resilience and utilise resources, becoming true co-pilots in our care.

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