Eva Bensasson

Eva Bensasson’s experience of rare genetic conditions began when her daughter’s whole-genome sequencing revealed an ultra-rare mitochondrial gene variant. Navigating the complexities of genetic screening and diagnosis has motivated her to support other families on similar journeys and to contribute to improving the patient experience. Her professional background is both in visual arts practice and web technologies, with a focus on user-centred design and accessibility. Outside of work, she has led community initiatives, organising projects to improve shared green spaces and foster community connections. As a member of the Participant Panel, Eva is committed to leveraging her skills and personal insights to advocate for families and advance genomic healthcare.