Clarissa Hopkins

Clarissa had a clinical diagnosis based on symptoms for over a decade before the 100,000 Genomes Project finally located the genetic cause, which was a rare variation of an already rare disease.

Clarissa is a member of the Participant Panel and an Occupational Therapist who uses advocacy skills daily in collaborative work with clients, and hopes to bring these skills, along with experiences of healthcare and living with a rare condition, to her work with the Participant Panel.

Clarissa joined the ARC in January 2024.