Name: Genomics England
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Continuing the legacy: Keeping participants at the heart of Genomics England
By Adam Clatworthy and Helen White on 9 Dec 2024

Helen White and Adam Clatworthy, Vice-Chairs for the Participant Panel at Genomics England, share their experience leading the Panel in a time of change and uncertainty.
Participant stories

Participant Panel
From a blank piece of paper to part of the culture: Building a Participant Panel
By Rebecca Middleton and Jillian Hastings Ward MBE on 25 Jun 2024

In this blog, Jillian Hastings Ward MBE and Rebecca Middleton reflect on their time leading the Participant Panel at Genomics England.
Participant stories

Participant Panel
Advocating globally for answers for an ultra-rare condition
By Alex Gaudlap on 27 Feb 2023

In this blog, Alex tells the story of her son Raymond and her work to find better treatment and answers for his ultra rare condition, VAMP2, which only has 21 diagnosed cases worldwide.
Participant stories

Rare disease

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Continuing the legacy: Keeping participants at the heart of Genomics England

From a blank piece of paper to part of the culture: Building a Participant Panel

Advocating globally for answers for an ultra-rare condition

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