Genomics England welcomes publication of the Code on Genetic Testing and Insurance

23 Oct 2018

The Department of Health and Social Care and the Association of British Insurers (ABI) have announced the publication of the Code on Genetic Testing and Insurance today.

The Code is an agreement between Government and the insurance industry – with a commitment from insurers to not ask customers about predictive genetic test results when applying for insurance.

The Code updates a previous agreement – known as the Concordat and Moratorium on Genetics and Insurance – which was renewed every three years. The Code: will now no longer expire after three years, but will be reviewed; has been written to be more customer-friendly; and commits to a joint Government/ABI annual report to keep consumers updated on any developments.

Genomics England Chief Executive, Professor John Mattick, said:

“Genomics England welcomes today’s publication of the Code on Genetic Testing and Insurance. The success of genomic medicine depends on the understanding, acceptance and trust of the public – and this agreement between Government and the insurance industry provides reassurance that genomic information will be used only for the benefit of patients and their families.”