The Participant Panel
The Participant Panel is a key advisory group for Genomics England, working to ensure that the voices of patients, their families, and their experiences inform our work.
Key responsibilities
Oversee the data access process
Give input on who has access to participant data and how it is used.
Champion and protect participants' interests
Ensure participants are at the forefront of ongoing research efforts and decisions.
Advise the Genomics England Board
The Chair of the Panel reports directly to the Chair of Genomics England's Board.
Sit on other committees and boards
Members of the Panel also sit on our Access Review Committee, Research Network Committee and Ethics Advisory Committee.
Share experiences and advice
Panel members are often asked for their experience of genomic services and advice on future design.
Listen and respond to participant feedback
Make sure participants' current experiences are used to inform future service design.
Ensuring participants are at the centre of decisions
The Panel works together with teams across Genomics England to ensure that the interests of participants are kept at its heart.
Read our language guide
Developed by the Participant Panel, this guide recommends how to talk about the people whose data is curated by Genomics England.
Quarterly Participant Panel Meeting Summaries
The Secretariat of the Participant Panel publish a summary of the quarterly Participant Panel meetings. These summaries aim to provide a transparent view of the discussions, insights, and updates shared during the meetings, ensuring that patients, participants and the public are informed about the Panel's valuable work.